A tribute

It is a sorrow filled day when all that remains
are memories
The bright light of her eyes will fade
never to be seen again
Her laughter will echo in our heads
never to be heard again
We must remember to smile and speak fondly of her
to remain alive despite her death

Dedication:  For a wonderful woman whom I will dearly miss. She loved my children like they were her own, for that I will always be thankful.

 

We are all beautiful

Earlier this week a hateful letter went viral on social media.  It was written by "Pissed off mom" basically telling a grandmother that her grandson with Autism should either be hidden away from society or euthanized.  This letter was written by a coward who would not even own their opinions by signing their name. 

Excuse my language, but this is bullshit.  Plain and simple.  Even babies can understand "object permanence", just because you don't see it, doesn't mean it doesn't exist. 

I try to imagine how she must have felt after she read this letter.  Unfathomable but I will try:  heartbroken, irate, deeply saddened, disappointed.   Police determined that it was not a hate crime which I don't understand at all (possibly because there was no direct threat), but it certainly was hateful.  To know someone in your neighborhood possibly right next door is thinking these thoughts and propagating ignorance is horrifying.  I would certainly be terrified that someone might try to harm him and he would have no way to defend himself.

I have had the pleasure of meeting many children and some adults with Autism all with different abilities.  I spoke with one boy who knew the complete schedule of events at CHEO and attended as many as he could since he was in the hospital for quite a while.  Children with Autism are not typically social, but once an interest is piqued, watch out!  They will talk your ear off for hours.

I also had the pleasure of meeting a teen who communicated exclusively through his iPad.  Talking out loud was so uncomfortable for him but with today's technology he has been able to have a voice and interact with others as long as they are willing to take the time to listen.

Everyone is different.  Some get "labels" for different reasons, some don't.  Kids with special needs are not getting special treatment.  They are getting the treatment that they need.  Speech therapy for a child with Autism is as necessary as a wheelchair for his peer with paralyzed legs. 

Down at the bottom of it all, we are all the same.  Black, white, red, blue, green and all colours of the rainbow.  No one is better, no one is worse, we are just different.  We need to start seeing the beauty in others, really taking the time to know someone without prejudice or judgement.  I would also challenge people to ask questions in a respectful way if you are curious about someone with a known disability.  Many are quite willing to talk openly and will answer questions given the right situation and their comfort level.  

Not all disabilities are visible, ANYONE you know could have one. 



 

Baby Doll

On July 2nd, 2013 we welcomed the prettiest little girl into our family.  She was born at 1:19 pm weighing 6 lbs 11 oz.  It was not an easy pregnancy, nor did the scheduled c-section go as planned (I won't go into the awful details here, it may deter women from having children.), but in the end it was worth it to have our precious daughter here with us.  She is a beautiful baby with a mild disposition and boy does she ever love to sleep!  (I am not complaining, just wondering, "is this normal??" :)) 

I am so lucky because I get to fall in love all over again.  It's crazy how it's different, but yet the same as when my gorgeous son was born just over 6 years ago.  You have this little person there in front of you that you barely know but love so totally and completely that you can't wrap your head around it. 

Now, almost 4 weeks later I've gotten to know my Baby Doll.  She has settled into a fairly good routine, in 3-4 hour cycles.  We've had a surprise "sleep through the night by accident", it was an anomaly, but one of the best night's sleep I've had since before I got pregnant!  Also, to my delight, my son has become an adoring big brother.  He is eager to help, loves to check on the baby or get her something she needs.  He unfortunately won't change diapers, but I think I can live with that.  I have loved seeing this compassionate, caring side of his personality.  I thought he might be a bit jealous of the baby, but he hasn't been at all.  He has been looking for lots of attention of his own, but I figure that's to be expected.  He's not going about it in an obnoxious way, he just wants us to play with him and he is used to us having all of our time for him.  Overall, I could not have asked for a better transition from 3 in the family to 4.

Welcome Baby Doll, we love you so so much.

Birdlike tendencies

Wow, this is new, something I never experienced in my first pregnancy, NESTING!  I find I have this incredible urge to organize!  Especially related to baby items, old and new!  We made a large purchase earlier this week, dressers for all 3 bedrooms!  It hurt a bit in the pocketbook, but has really done wonders in terms of getting everything to make sense!  We went to Ikea knowing exactly what we wanted, a large 6 drawer dresser for our room, and two smaller 3 drawer dressers for each of the kidlets rooms.  (By the way, their new store in O-Town, is crazily gigantic.  I almost didn't last the whole way through!  Hubby offered to let me ride on the furniture trolley and push me to the end...)  They are all the same colour, black/brown and should serve us well over the next several years.  The best part is that they are made of actual wood!  Not stupid press board or whatever it's called!  I've also been through a lot of big brother's clothes to clear out stuff that is clearly "boy" and pack away what we can potentially reuse.  Next person I know having their first boy is going to get a very large donation!  I just don't have enough room in my house to keep it all.  Buying a bigger house is certainly NOT going to happen.  :)  We are down to a matter of days before D-Day (Daughter Day!) and I'm not panicking but certainly wanting to get things done soon! 

Shut the front door

It has seriously been over two months since my last post?  Sheesh.  Neglectful of me!  We are now in the countdown phase to baby girl's arrival...July 2/13 will be the big day!  I have officially stopped working, yay!  Now feeling more tired than ever, especially in the evenings where I am sure my whole body has mysteriously transformed into lead!  It's hard to be slow and not want to be!  Took my bug to the park yesterday after school and just about died on the walk home which seriously, takes only 5 minutes...sigh.  Not to mention all my appts at the hospital with the worst parking on the planet. Omg, am I complaining again?  I really try not to do that....but it's inevitable.

So BABY DAY is scheduled for July 2nd, it really can't come fast enough.  I know I will have recovery time to cope with but I'm so anxious to meet our little girl.  So are Daddy and Big Brother.  Seems like it's taking forever!  

Dear blog

Dear Blog,

I am so sorry to have neglected you.  You see, things have been busy!  It's not that I don't love you, it's not that I don't care, It's just so hard to squeeze out the time to devote to writing to you! 

Let's see, where to begin...

Almost 26 weeks have gone by, more than half way to baby girl's birthday.  Should be sometime around the beginning of July (July 7th is the est. date).  We are very excited and J is looking forward to having a sister.  The first three months were riddled with fatigue, sickness, complete loss of appetite to the point I had to consume protein shakes to make sure I was getting some kind of nutrition.  The next three months were better in terms of fatigue and sickness but aching set in, at least I had more energy!  It was also exciting to tell all our family and friends and find out we are expecting a baby girl.  One of each, just about perfect (although, we would have been thrilled either way...it's a win-win situation!).  Heading into the last three months, starting to slow down again, swelling is starting in the feet, back aches more often than not, and right wrist is bothering me to no end.  This will end my complaint section of the program because it doesn't do any good anyway.  I am certainly looking forward to my next prenatal massage coming up in just a couple of days!  It's wonderful how they have developed a pillow system to allow for lying on your stomach!  Whoever invented that should be a rich rich person and never have to work again.  Oh yes, work.  When to stop working?  Sometime in June probably.  A replacement has already been hired which is wonderful news that we can overlap a little to allow for some training time, will be so much easier on my colleagues that way.  I will miss them over the course of the year, but I will be back soon enough!

Bugs 6th birthday is coming up at the end of May, need to figure out a celebration for him, I can't believe he will be starting Gr. 1 in September!  Crazy how time flies.    He's growing up and there's nothing I can do to stop it!  He is so tall, so smart, and such a sweet boy.  

August will bring a super fun event, my big sister's wedding!!  We will all head to St. Catharine's to attend her wedding at Niagara on the Lake, not sure how the traveling will go with a 1 month old and a 6 yr old, but we wouldn't miss it for the world. 

So, dear Blog, I'm sorry for not writing sooner, but as you can see life has been a little on the crazy side, but hope you are keeping well!  Until next time...

A big thanks to CHEO

One and a half years ago my son had surgery at CHEO to correct his lazy eye.  Since then he has been followed regularly by Dr. M. O'Connor, Opthalmologist for regular check ups to make sure things were going well.  Yesterday was our final appointment, Dr. O felt my son's eyes were stable, had healed extremely well and no longer needed follow up from Clinic 8. 

I want to take this opportunity to thank Dr. O'Connor and all the staff at CHEO who were so wonderful through appointment bookings, surgery day, through to his discharge.  Dr. O is fantastic with the kids, is playful and patient during his appointments and seems to genuinely get a kick out of seeing his patients.  He listens to what they say, lets them answer his questions, and gives good positive reinforcement throughout the appointment.  

I feel lucky to live in a city with such a fantastic and supportive hospital for children.  They are truly family centered and treat the kids with such respect which makes them feel important and part of their own care. 

http://www.cheo.on.ca/